• neuropean@kbin.social
    link
    fedilink
    arrow-up
    20
    arrow-down
    1
    ·
    1 year ago

    If you’re producing a product at a loss, you’re not going to be in business for very long. The bigger issue is that the treatments rely on companies to foot the cost of production for the promise of later profit. Cut the companies out, have medical centers manage production not-for-profit.

    • Nougat@kbin.social
      link
      fedilink
      arrow-up
      6
      arrow-down
      1
      ·
      1 year ago

      Let’s be perfectly clear: in no case would the pharmaceutical company be taking a loss. They just wouldn’t be making enough money.

      Of course there is a cost to producing the therapy, maintaining equipment, training physicians; and the number of people who need this therapy is very small. So what? That just makes the therapy cost more per patient. Insurance premiums might go up a tiny bit, taxes might go up a tiny bit, depending on the healthcare system where you are.

      • FlowVoid@midwest.social
        link
        fedilink
        English
        arrow-up
        3
        ·
        edit-2
        1 year ago

        That just makes the therapy cost more per patient.

        If a therapy costs too much, insurance will no longer pay for it.

        And when insurance decides not to pay for a therapy that is only used by a handful of people, there are often only a handful of complaints.

  • Tenthrow@lemmy.worldM
    link
    fedilink
    English
    arrow-up
    19
    arrow-down
    3
    ·
    1 year ago

    Please change the title of your post to match the title of the article. The post as it is violates rule 4.

  • popemichael@lemmy.sdf.org
    link
    fedilink
    English
    arrow-up
    11
    arrow-down
    1
    ·
    1 year ago

    I have a rare genetic disorder and I’ve been waiting for a therapy for years.

    It would be easy enough if there was enough money, too.

    • Mana@lemmygrad.ml
      link
      fedilink
      arrow-up
      2
      arrow-down
      2
      ·
      1 year ago

      Thought about going to Vietnam or Thailand? I hear they are spearheading gene therapy tech.

  • Treczoks@lemmy.world
    link
    fedilink
    arrow-up
    9
    ·
    1 year ago

    Well, yes. That is “American Health Care”, a radical counter proposal to health care as most civilized countries, where humans come before profits, know it.

    • space_gecko@lemmy.world
      link
      fedilink
      arrow-up
      4
      arrow-down
      1
      ·
      1 year ago

      Yup.

      I work for “medium pharma”. We spend between 1 and 5 dollars per experiment (depending on the cell type). We run close to 2 MILLION experiments every week. We are still years away from any of those experiments yielding a safe compound that can move on to human trials, assuming we don’t run out of money first.

      Targeting drugs for rare diseases won’t be profitable until we achieve proper high-throughput experimentation, analysis, and somehow streamline the FDA approval process. The government needs to fund academic research on these diseases, but no university lab can match the kind of experiment production that we’re already doing in industry.

        • FlowVoid@midwest.social
          link
          fedilink
          English
          arrow-up
          3
          ·
          edit-2
          1 year ago

          Very few drugs are largely government funded. The government funds basic research, but it won’t fund clinical trials. Pharma companies are almost entirely responsible for clinical trials, and they are way, way more expensive than basic research.

  • lechekaflan@lemmy.world
    link
    fedilink
    arrow-up
    2
    ·
    1 year ago

    Coming from a part of the world where medical care is heavily for-profit in an impoverished country, it will be only accessible to those willing to pay for it in Lamborghini dollars.

  • 100_percent_a_bot@lemmy.world
    link
    fedilink
    arrow-up
    1
    arrow-down
    2
    ·
    1 year ago

    Yes corporations are le bad but you can’t really expect anyone (except the occasional millionaire philanthropist) to invest large amounts of finite research money on ultra rare diseases.

    It’s worse in systems without private capital. What incentive would a government have to invest in medical technology that doesn’t have the broadest appeal possible?